cazz2211 years ago

hi susanburgess.im sorry to hear of your problems.i hope they settle soon.i bought a book(used) of amazon called liver cleaning diet by dr cabot.while i dont follow it word for word its made me reevaluate my already good diet to an even better one which has made me feel better.i hope this helps.take care and keep strong.x

susanburgess in reply to cazz2211 years ago

Thank you for the information I have sent for this book today.

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Val0211 years ago

Hi I too had/have the the tingling and burning in my lips/mouth and hands and feet. The neurologist put me on Trazodone which certainly calmed it all down.

Nancybeck123 in reply to Val0210 years ago

Glad that helps. I will ask my dr.

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susanburgess11 years ago

I have been on ursofalk for 8 years and I have been alright no problems.

cowren11 years ago

Hi constant dryness could be sjorens disease have you spoken to drs

I have dry mouth especially in the morning and I have put it down to bp tablets

It could be one of your meds causing this also

Hope you find some relief soon xxxxx

roseter11 years ago

I get the same burning and have now been diagnosed as sjogrens syndrome secondary to pbcyou will just have to be careful what you eat. I avoid any spicy foods even tomato ketchup is too strong for me. Also oranges and oats make me bad.any pickles just have plain things

sharon771611 years ago

Hi, I have the dry mouth and it used to wake me up what seemed like every hour through the night, then my Dentist gave me a sample tube of biotene gel, WOW with this I now get a whole nights sleep and it helps throughout the day. You can get it in BootsSharon

susanburgess in reply to sharon771611 years ago

I never wake up with this problem I am changing my diet as I think this causes the problem in the day time. I think we have to look at what we eat and start to eliminate certain things my daughter has told me that what grows in the ground what flies and what walks on the ground is what you can eat. I hope this might help I assume you have the same condition as I have pbc

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Flymccoll11 years ago

Hi I have pbc and sjogrens which the docs, dentists and the opticians can give you drops for, depending on where you are affected. My dentist also advised me to use sodium, laurel sulphate free toothpaste which also helped. I also have coeliac (another of the autoimmune lot) and I interestingly get the tingling in my mouth and lips when I have been accidently glutened. If you have any other health problems it might be worth getting tested as it is now just a simple bood test. good luck .

petula11 years ago

take a look at your meds; amytriptaline is known for causing dry mouth. since I stopped its been loads better

petula11 years ago

Amitryptaline ( sorry) not sure of spelling, is known for causing dry mouth. Don't waste ur money buying products, get a script off doc; "biotene" is good, well it works for me! but since stopping amitriptaline its loads better

Nancybeck12310 years ago

Hey Susan, I understand your problem with your dry mouth and lips tingling . Please don't give up. All the symptoms come and go. The itching has stopped for me but the tingling and numbness is bad too. I am going to use b12 vitamins. Ordered them and they will be here tomorrow. I'll let your know if they help. I am so lazy lately. Just want to rest.

susanburgess10 years ago

I chew gum sugar free for the dry mouth. My doctor gave me Amitriptyline for the tingling and burning sensation

LenaChandler549 years ago

Hi susan, I live just south of Clare in Belchamp st paul I believe we are close to one another

?

susanburgess in reply to LenaChandler549 years ago

I live in Newmarket only lived there for six years.

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LenaChandler54 in reply to susanburgess9 years ago

How are you doing with your pbc? I was diagnosed 5 yrs ago. My main symptoms are joint and muscle aches and tiredness.

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Calogia9 years ago

Susan...I have had this ex act problem and my lips are burning really bad right now. Lemon, anything with salt. They really make my lips burn. I put salve on them. It usually lasts a few days but you're right it is horrible.

I hope you get some relief!!

Calogia

susanburgess9 years ago

I chew gum when my mouth gets dry and the doctor gave me xylocaine spray to put on my lips I spray a little on my finger then put in on my lips the lips stay numb for a little while hope this helps.